We’re back home. To Virginia. To reality. To a house without Cam. (Cue sounds of hearts breaking.) His Celebration of Life was a big success. Not a dry eye in the place, but some smiles and laughter, too. I’m so proud of my family, for putting on a show worthy of my little buddy. I …
Cameron Barrow passed away on April 22, 2023, in Norfolk, Virginia after a 7-year battle with brain cancer and the complications resulting from treatment. Cam was born to parents Lauren and Kris Barrow on March 5, 2015, in Parker, Colorado. Despite his medical challenges, he was known to all his friends, family, teachers, doctors, nurses, …
I haven’t posted in about 4 months for a couple of reasons. One, I’ve been very busy with the move to Virginia Beach and getting everybody all set up in the new place and stuff. And two, I was feeling superstitious. Because things had been going so well, I was afraid things would go …
This is gonna be a long one. I apologize. Skip to the end, if you want, it won’t hurt my feelings! My last update on Cameron was posted in September. Technically, that was only three months ago, but in Cameron days, it was forever. I’ll try to keep it short(ish) and get you all caught …
Things had been going relatively well since our trip to Boston. We appeared to have a handle on Cam’s anemia situation (just transfuse every month, no problem!), he had a sleep study that gave us some new settings to work with on his machine, we went to a naturopathic physician who recommended some new supplements, …
We love Boston. After our family spent a couple months there in 2016 when Cam had his radiation treatments, it’s always felt a little bit like a home away from home. Once again, we stayed at Christopher’s Haven, across the street from Massachusetts General Hospital and Beacon Hill. We got to hang with the brave …
Update April 2, 2022 Well, we made it home! Yay! Since we last talked, Cam was extubated successfully, and proceeded to recover like a rock star in the days following. We got home Sunday night and had a week or so to acclimate to the real world again. Though most of this monotonous hospital stay …
I’ve been hiding. And I haven’t been fair to you. A few months ago, I stopped updating Cameron’s Caring Bridge blog. I let all the people who have been following him, who care about him, pray for him and love him know that I was taking it down and that if they wanted to follow …
I want to talk about staring. For just a minute. Cameron gets stared at a lot, ever since his initial diagnosis five years ago, when we brought him home from the hospital with a ragged scar across his scalp, a droop in his face and a vacant look in his eyes. During the pandemic, when …
Have you ever looked at the floor of a public restroom? I mean really studied it? Even if they mop twice a day as they’re supposed to, it’s not pretty, you guys. Wet spots. Sticky spots. Bits of toilet paper and hair. Don’t think about it too hard or you’ll vomit. Last weekend, on …
Everyone – Including the Disabled – Has the Right to an Accessible Bathroom Read More »
