I want to talk about staring. For just a minute. Cameron gets stared at a lot, ever since his initial diagnosis five years ago, when we brought him home from the hospital with a ragged scar across his scalp, a droop in his face and a vacant look in his eyes. During the pandemic, when …
Have you ever looked at the floor of a public restroom? I mean really studied it? Even if they mop twice a day as they’re supposed to, it’s not pretty, you guys. Wet spots. Sticky spots. Bits of toilet paper and hair. Don’t think about it too hard or you’ll vomit. Last weekend, on …
Everyone – Including the Disabled – Has the Right to an Accessible Bathroom Read More »
At four years old, with multiple disabilities and medical issues, Cam made his first international trip. For two weeks Cam and the rest of us saw and did everything we could in Edinburgh, the Scottish Highlands and London. It wasn’t easy, hauling this kid across the pond with his wheelchair (and sometimes carrier), but totally …
Cam’s Top 6 Wheelchair Accessible Activities in Edinburgh, Scotland Read More »
Happy 2021! We’re still here. And I guess, if you’re reading this, so are you! I don’t need to tell you how the last year has been, since you also live on this planet, but I do want to apologize for not posting at all. To the handful of people wondering what’s happening in the …
It may sound crazy, but sometimes I forget that my son Cameron has cancer. Sure, I remember that he uses a wheelchair, a gait trainer or scoots on his rear end to move around because he can’t stand or walk on his own. I remember he uses grunts, gestures, one-handed signs, the occasional intelligible word …
Last week, for the first time in months, Cameron was admitted to the hospital. Oh, we’ve come close a few times recently, only to be sent home at the last minute, with instructions to return if he worsened. This time Cam got his ticket to the respiratory floor, identical to the surgery floor, except our …
I haven’t posted in over six months. Not because I haven’t been writing and working, but because life got in the way. Again. Sure we had some normal stuff happen, like moving to a new house in a different town and losing my grandfather, but the main reason is because Cameron’s dang body just …
Today the Barrow family invented a holiday! Two years ago today, Cameron was diagnosed with a brain tumor, though we didn’t yet know what kind. Two years ago today, the emergency room doctor wheeled in a monitor and showed Kris and me an image from a CT scan that showed a mass the size of …
My son Cameron is medically complex…if you are one of my twelve subscribers, you know this. But did you know in the state of Colorado, if a special needs child qualifies for a nurse aide, his parent can get certified to be that child’s nurse aide and get paid for it? This was an amazing …
Last week Cameron had a neurological and motor assessment, one year after the end of the radiation to his brain, and six months after his hemispherectomy. For those of you unfamiliar with the neurocognition test, it involves asking the subject to do things like place blocks in a cup, point to the picture of the …
