Today the Barrow family invented a holiday! Two years ago today, Cameron was diagnosed with a brain tumor, though we didn’t yet know what kind. Two years ago today, the emergency room doctor wheeled in a monitor and showed Kris and me an image from a CT scan that showed a mass the size of …
It’s the name of this blog. And its a way of life (okay, that’s a bit dramatic, but stay with me…) I first started this blog in an attempt to connect with other parents of pediatric cancer patients. I picked kidsgetcancer.com because I thought it might be easier to find in search engines …
My son Cameron is medically complex…if you are one of my twelve subscribers, you know this. But did you know in the state of Colorado, if a special needs child qualifies for a nurse aide, his parent can get certified to be that child’s nurse aide and get paid for it? This was an amazing …
Last week Cameron had a neurological and motor assessment, one year after the end of the radiation to his brain, and six months after his hemispherectomy. For those of you unfamiliar with the neurocognition test, it involves asking the subject to do things like place blocks in a cup, point to the picture of the …
This blog has been here for a few months, but it never felt quite right. It’s been about Cam, and it still is, but it’s also about me, which just makes me squirm. But lately, I’ve been thinking, why not just go with it? I’m here on Earth just trying to do what everybody else …
Today is September 12. Although yesterday was a day of reflection and grief, honoring the memory of those that fell 16 years ago, today is- at least in my house- a minor holiday. Cameron rang the bell one year ago today, signaling the last day of proton radiation. Lots of crying around here this week …
Welcome to Lauren’s philosophy corner…don’t hang up! I need your help with a brain buster. I got into the middle of a very interesting conversation with my meningioma Facebook group recently. Because meningiomas (tumors of the lining of the brain) are ALMOST always considered benign, one of them asked if they could be considered a …
Today is the day Cameron was supposed to have his next brain surgery. Instead, I get to be home with him, to laugh and worry and stare at the snow coming down in May. Cam has a specific, rare type of epilepsy characterized by subtle seizures that, if left untreated, will likely cause his development …
Cancer is the gift that keeps on giving. Since my son was first diagnosed with a brain tumor fifteen months ago, it has caused all kind of problems now leading up to a whole new adventure for my little guy…epilepsy. Last week we checked into the hospital for an extended electroencephalogram (EEG) with video and …
Lately it seems like all I hear about is how awful people are, shooting up elementary schools and bombing children with chemicals. I turned off the television last night and went to bed feeling sad and icky, but this morning it just continued. It’s a relentless parade of sociopaths and politicians, hate and selfishness, making …
