Welcome to Lauren’s philosophy corner…don’t hang up!

I need your help with a brain buster.

I got into the middle of a very interesting conversation with my meningioma Facebook group recently. Because meningiomas (tumors  of the lining of the brain) are ALMOST always considered benign, one of them asked if they could be considered a “Cancer Survivor”  once it was surgically removed.

It’s a simple question, right? What’s a “Cancer Survivor”?

A “Cancer Survivor” is one who survived cancer. (Duh)

Not so quick, there, smarty pants….maybe it’s not so simple.

Elsewhere on the big ole’ internet, you can find different arguments for the term “survivor”. I want to talk about the term “cancer”. How do you argue about the definition of  cancer, you ask? Well, I had a few minutes, so I’m going to try…

First, the term “cancer” implies that the errant cells are invading local tissues and/or spreading to other organs, that the tumor in question is aggressive or malignant. In other words, you can’t have a benign cancer. Oh, sure, you can have a benign tumor, or benign neoplasia, but as soon as you say “cancer”, it implies a dangerous thing.

This gets confusing super fast because sometimes it’s easy to split hairs. If a “benign” tumor is on an important structure, like a major artery or your optic nerve, is it really benign? Or, conversely, if you have a more aggressive tumor in a location where it is removed completely and early and no further treatment is needed, is it really cancer? Does the person with either one of these scenarios deserve the label “Cancer Survivor” more than the other?

I have one theory. Maybe “Cancer Survivor” is a social term more than a medical one.

To medical people, neoplasia is more precise. It means “new, abnormal growth”, can be classified as “benign” or “malignant” and it makes you sound real smart when you say it. But say “I’m a ‘Neoplasia Survivor’” to most non-medical people and they’ll ask if you need a tissue. The word “cancer”, on the other hand, brings a different picture to mind; a malevolent, life-altering, invasive disease, an enemy meant to be vanquished. A survivor of that kind of battle deserves a title, anyone can agree.    

Now, you may ask yourself, does it really matter who can call him or herself a “Cancer Survivor”? Of course it does, silly. Maybe it’s dumb, but we, as humans, need labels. How else would we know what shirt to buy or what to name our website? Besides, if you are a “Cancer Survivor”, suddenly you’ve got street cred.

Meanwhile, back in my Facebook group, the comments were split. The term “Cancer Survivor” was more often placed on people who went through more treatments- more surgeries, chemotherapy or radiation. The more trouble they had killing their respective tumors, the more they were “Cancer Survivors”. Those who were clear after a single brain surgery (still quite a feat, I mean- dang! there was a person digging around in your brain!) were more apt to call themselves  a “tumor survivor”. This despite the fact that they all technically had the same tumor type. Hmmm, interesting…

I’m aware that I will probably make some people angry, bringing this up, but I’m not trying to be offensive. For the record, I don’t think it’s a contest. I don’t know how a person decides if she “went through” enough to be a “Cancer Survivor” so I suppose no one has a right to judge and everyone has a right to label herself or not label herself if she wants to. Or get a tattoo and run a marathon, especially if the proceeds go to fighting cancer. That’s what really matters.

By the way, in case you were wondering, I do consider my son Cameron a “Cancer Survivor”. His tumor is atypical. It was growing very fast and invading the tissue around it, but it was not metastasizing. He went through five brain surgeries, three rounds of chemo and thirty-four rounds of radiation, so by anyone’s standards, he’s a “Cancer Survivor”. His tumor, without sporting the descriptor of “malignant”, tried its very hardest to destroy his brain and my family, and Cam survived it.

So, I ask you…what is a “Cancer Survivor”? Is it just those who had malignant or aggressive tumors? Do the people who survived “benign” tumors, either with or without major treatments, get to call themselves “Cancer Survivors”? Where do we draw the line?

I don’t have the answers. Send me your thoughts and comments, but BE NICE!


3 thoughts on “What’s a Cancer Survivor?”

  1. From my anecdotal experience, most people do consider it cancer TREATMENT survival, tho they may not realize it that way. There seems to be a social badge of suffering in the errant cells department. Which, curiously enough, doesn’t seem to transfer to ‘silent’ chronic illness. But I degress.

    I agree with you. I don’t have cancer, but I do have chronic pain and recently “survived” (haha) meningitis. A very common theme is for people to start asking me advice on how to handle their own illness or pain, then invariably they’ll say, “I mean, your problem is so much worse than mine, so I guess I shouldn’t talk about it. I’m sorry. ”

    Wwhhaaaat!? *shakes head fast*

    Where does everyone get the idea that their own experience doesn’t matter if someone else has it worse? Or if they *think* someone else had it worse? I’m a firm believer that everyone’s experience matters, and forms Who They Are. How could the things that make you You *not* matter?!

    And I don’t tell them this, but despite the fact that people pity me (ugh! and in a sense glorify my physical pain), the problem I would choose to solve if I had just one tiny wish would be my *emotional* pain. My chronic pain is the least of my worries, as it turns out. I wish everyone would be a little kinder to themselves, and also not assume that what they see is the whole story.

    Thank you for this post. Pain and suffering is not a competition. I’m so very sorry your family and your tiny giant of a boy have had to go through this. And for the record, I love Who You All Are.

    1. I agree! I don’t think people do it on purpose, but it does seem to become a competition. We all have our struggles and our baggage and we all handle it and “survive” it differently. Less judging and labeling and more tolerance and support seems like a good plan to me 🙂 I hope you are feeling better! Thanks for commenting!!

  2. Hi, I found your webpage through GoFundMe. I was reading of campaigns for Meningiomas. I was diagnosed on April 26th 2006 with an egg sized meningioma, which started our battle. I was given three choices: Watch and wait, Gamma Knife Surgery (radiation really, no knife involved) and regular surgery. Since I wasn’t real excited to have someone root around in my brain, we elected for the Gamma Knife. Bad move, we found out later (from another neurosurgeon) that I should never have been a candidate for that, since it was already so big. I went thru 9 months of almost daily gran mal seizures, memory loss (which isn’t good for a nurse), and all the other dramatic stuff having a brain tumor entails.
    To make a long story shorter — I had brain surgery on April 4, 2007. The surgeon was able to get about 95% (it was grown around that big artery). The surgeon said it was much bigger and more entailed than originally thought. After post surgery pulmonary emboli that almost killed me, and 6 months in the hospital, I went home to a packing home…. my husband, a US Marine, was retired because he was non-deployable. We moved back to my home town, still unable to move the left side of my body and much memory loss.
    A bit more than ten years later — I walk, can move, still cannot recall most of my nurses education and my childrens childhoods — but I am alive and have lived to see grandchildren born…
    I am SO very happy for your son!!! I hope he continued to thrive and grow and beat the meningioma that has tormented your life., that it is not re-curring or growing again. I was told that if I lived 10 years without it growing back/larger, then it will be growing so slowly that it won’t need anything for the rest of my life… Oh, as a post script —- the neurosurgeon said mine was estrogen receptive (like giving it miracle gro!).. it probably had started at puberty — stopped til each pregnancy (4), then was dormant until a really nice family practice doc gave me ESTROGEN for what she thought was the “early change” — so that Miracle Gro really did its job, which is when I had gone back to see her for migraines — and my story began…..
    Best of luck to you and your family!!!

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